I got dangerously sick while waiting for double-lung and liver transplants. But then I got a second chance at life after starting Trikafta, even though I have two rare mutations.

I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

Waiting. It’s not just a verb — it’s a state of being, an emotional terrain, a test of patience and resilience. For those of us living with cystic fibrosis, waiting is woven into the fabric of our ...